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RELEASE OF
HIV TEST RESULTS:
FAQs
by Catherine E. Miller, RN, JD
CAP Risk Management
Representative
and
Dan Groszkruger, Esq.
Consulting Editor
California law mandates heightened
protection for HIV test results. Physicians must
obtain a patient’s written consent each and
every time they release a medical record
containing HIV test results. A patient’s general
consent to release medical records is inadequate
to authorize the release of HIV test results to
anyone other than the patient. Instead, a patient
needs to sign a consent form that makes specific
reference to disclosure of the patient’s HIV test
results.
| Physicians must obtain a
patient’s written
authorization each and
every time they release a
medical record
containing HIV
test results.
A patient’s general
consent to release
medical records is
inadequate to authorize
the release of HIV test
results to anyone other
than the patient. |
The following are frequently-asked
questions (“FAQs”) regarding the protection
and release of HIV test results, and guidelines
based on California law.
- What kind of
information requires
the patient’s specific
written consent for
release? HIV test
results, whether positive
or negative.
- What must physicians
do in order to release
HIV test results?
Physicians who order
HIV tests or use HIV
test results in the course
of treatment are
required to obtain the
patient’s written consent prior to releasing
this specific information.
- What if the patient discloses his HIV
status to the physician? The requirement
of specific, written consent applies only to
HIV test results. Voluntary disclosures
made by the patient during the course of
treatment are still confidential, and worthy
of protection, but are not considered HIV
test results. Similarly, the heightened
requirements for release of HIV test results
do not apply to release of information
regarding an AIDS-related condition (e.g.
immunosuppression) or an AIDS-related
diagnosis.1
- What information should be included on
the medical records consent to release
form for HIV test results? A specific,
written consent form will include: (1)
permission to release the patient’s HIV test
results, (2) the person(s) to whom release
will be made, (3) the
purpose of release, (4) the
patient’s signature, and
(5) the date of signing.
- Should records
containing HIV test
results be released in
response to a subpoena?
No. A subpoena is
insufficient. HIV test
results should be released
only with a patient’s
permission, or in response
to a Court order signed by
a judge.
- Is a physician legally
obligated to notify a
sexual partner(s) or known or suspected
contacts of an HIV positive patient? No.
Giving notice to partners is not required by
law. However, the physician may choose
to disclose positive HIV test results to
persons believed to be at-risk (e.g., a patient’s spouse, sexual partner or needle-sharing partner).2 But, prior to making disclosure to any
third party, the law requires that the physician do the following: (1) discuss test results with the
patient and provide proper counseling; (2) attempt to obtain the patient’s consent to notify any
third parties; or (3) notify the patient prior to contacting at-risk third parties.
- Can HIV information be shared with health care workers? Yes. HIV test results may be shared,
on a need-to-know basis with other health care workers, provided these individuals are directly
involved in the patient’s care or serve as members of the patient’s health care team.
- Must positive HIV test results be reported to the local health department? Yes. Effective July
1, 2002, California law now requires the physician to report positive HIV test results to the local
health department. This reporting is done using a non-name code in order to protect the HIV
patient’s privacy. Contact the local health department for more specific information regarding the
proper reporting procedure.
- What else can be done to ensure that HIV test results are released only to authorized persons,
when appropriate? There are effective ways to prevent, or to minimize the risk of, improper
release of HIV test results. Physicians may adopt a charting system to segregate sensitive information
from other medical information. The use of color-coding, or a separate envelope within the medical
record, or a cover sheet marked: “Confidential: see office manager prior to copying,” are all ways
of alerting those handling the medical record that HIV test results, or other sensitive information,
should not be copied or released without specific approval.
- What if a patient requests that his HIV status not be released? If the patient requests that the
physician remove or withhold certain information from the release of the medical record, such a
request should be treated seriously. The physician may honor such a request if the information is
protected by special confidentiality laws (e.g. HIV test results, mental health, sexual abuse, etc.)
but sending an incomplete medical record could pose additional risks. If any portion of the medical
record is withheld, good practice suggests a generic statement to the requesting party, to the effect:
“There may or may not be information excluded from this record, as required by State or federal
law, absent the patient’s specific written consent for release.” This statement should appear on
every incomplete release. Once the requesting party has notice that information may be withheld
from the release, the burden of obtaining the patient’s consent shifts to the requesting party.
- Should a physician honor a patient’s request that his HIV test results or diagnosis not be
documented? No. Honoring such a request could constitute a deliberate omission and grounds
for professional discipline, as well as a serious violation of law.
1 Special handling of medical records containing HIV tests results and any AIDS-related information
is recommended. If you have specific questions, contact CAP-MPT’s Hotline [1 (800) 252-0555]
for assistance.
2 When notifying third parties, the physician may not reveal the patient’s identity. Although the
physician need not notify at-risk contacts, the physician does have a duty to educate the patient
regarding the nature of HIV and how it can be transmitted to others. The physician should counsel
the patient to make voluntary disclosure of his HIV status. In this way, the physician fulfills a
professional obligation to both known and even unknown contacts of the HIV positive patient. The
nature of a physician’s duty to educate and counsel his patient may vary depending upon the
circumstances. If in doubt, consult CAP-MPT’s Hotline for assistance.

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