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Competency and Informed Consent
for End-of-Life Decisions
By: Dan Groszkruger, J.D., M.P.H.
Download article in Microsoft Word (.doc) format (zipped, 5KB)
Physicians regularly confront difficult legal issues that arise
within the physician-patient relationship. Few are more problematic
than end-of-life decisions, involving issues of competence and
informed consent. A legal definition of competence provides little
guidance for a clinician faced with a patient whose faculties
are probably impaired. What standards should apply to a determination
of competence? Should the physician follow an advance directive
executed by a patient at a time when his or her mental faculties
may have been impaired? What level of impairment will preclude
the patient's capacity to provide an informed consent? When should
a court determine the patient's competence? The following discussion
may assist the physician who is faced with this dilemma.
A competent adult may make his or her own treatment decisions,
including refusal of life-sustaining treatment. A competent adult
understands the nature and seriousness of the medical condition,
the purpose of the recommended medical treatment, and the risks
and benefits of consenting to or refusing the recommended treatment.
A competent adult is able to answer questions about his or her
condition or treatment, and demonstrates a rational thought process.
A patient should be presumed competent unless there are indications
to the contrary. While no specific test or measurement is required,
the attending physician is responsible for determining competence.
The patient's behavior, clinical condition and interaction with
family and friend are all relevant. A psychiatric evaluation is
not necessary, but the physician may consider one in close cases.
The substance of discussions with the patient and family, consultations,
and other relevant information should be recorded in the chart.
The physician's conclusion regarding the patient's competence,
or lack thereof, must also be documented in the chart.
Generally, a court's determination of competence is not required,
if the physician can adequately assess the patient's mental functions.
Where court intervention appears necessary, a petition (Probate
Code º3201) may be filed in Superior Court by the patient, any
family member, the patient's physician or other interested persons.
The petition should be based on the physician's findings that
suggest a deficit in alertness and attention, inability to process
information, irrational thought processes or inability to modulate
mood and affect.
A competent adult must be able to process sufficient information
in order to make an intelligent decision about recommended care,
including withholding or withdrawing life-sustaining treatment.
The physician must disclose all "material" information, i.e.,
information that would be regarded as necessary or helpful by
a reasonable person in the same or similar situation. Such disclosure
includes a description of the recommended measures, potential
adverse risks, complications, and expected benefits. Also, the
physician should explain the likelihood of success and treatment
alternatives, including the option of no treatment. Generally,
it is not necessary to disclose minor risks or consequences that
are remote an unlikely, although possible. The substance of the
dialogue between physician and patient must be documented in the
chart, as indirect evidence that informed consent was obtained.
Determining competence to provide an informed consent is a threshold
requirement for end-of-life decision-making. As with standard
of care issues, a retrospective review of the physician's conduct
and exercise of professional judgment often will focus on the
written record, which carries more weight than the physician's
present recollection of past events. Proper documentation of discussions
and findings, regarding a patient's capacity to give informed
consent and competence to make end-of-life decisions, is the surest
way to avoid or minimize exposure to malpractice liability.

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